Kim's Journal
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July 23, 2008
Trying to keep pain in Check!!!!!
I've spent the day trying to fight the fever and the horrible hip joint pain and I was actually able to at least get it to where it somewhat bearable. I think that I may have a chance of sleeping tonight for more than just 2 to 3 hours at a time. I really need to sleep tonight because tomorrow is my youngest daughters 12th birthday and I need to be able to take her out for a birthday dinner and of course a birthday shopping trip. I'm going to grit my teeth and bare it and make sure my baby has one of the best birthdays shes ever had. I'm just so happy that I have a place like this to go to where I can sit down and write stuff like this down if for anything just to get it out....at least on here.....everyone knows what it's like to hurt so bad andnever know whether or not a plan you make will be able to be followed through. But I will do the very best I can for her by beautiful, wonderful daughter. She so deserves to have a day that is all about her and not about this stupid disease and what it's going to do to me. I will be saying a very special prayer tonight. And as I sign out tonght.....I will also be praying for all of you other lupus patients that you have restfull nights and wake feeling the best you possibly can..........GOOD NIGHT
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July 22, 2008
My first
Wow......I've found a family here with people who know my disease and know what I go through on a daily basis. I almost cried when I got here. What a dream come true. It stormed here last night and I have been up all night with a fever and horrible hip pain that radiated into my back. It hurt so bad I couldn't lay still long enough to fall asleep. Now I have to try to stay up all day and try to get some work done in my house while trying to control the constant pain I'm still in right now............God I hate this stupid disease!!!!!! But like always.....I will make it because I have to. My kids still need me and I have family that still love me no matter how useless I may be!!! But to those of you who started this site I say a big Thank You!!!!! Who knows maybe I can meet some new friends.