Gladys
Patient
Last on 2 months ago
597 points.
Master

Gladys

Prepaing for the Walk for Lupus this Sunday...so excited..glad to have support from family friends 3 months ago

Tell us about your experience with/connection to Lupus

“I am not a fan of expressing my sad story about my experience with my condition, but if it can help others..then why not. I was first diagnosed with Systemic Lupus December 2005 and I've had it for three years now. i must say It was one of the most...”

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  • Crystal

    I'm sorry to hear that! It sucks to have worked so hard to be fired for something you can't control.

    2 months ago

  • Tammy

    REMEMBER.. TODAY IS EARTH DAY!!! 
    HAVE A GREAT ONE...
    GOD BLESS:>)

    3 months ago

  • Cassie

    Thanks Gladys! Hope you are doing well! Your status states you are graduating with honors in May...congratulations!! 

    3 months ago

  • Jayne

    Thanks lady :) It sounds like your gonna be doing the northern suburbs? walk? I always have my team do the downtown Chicago walk for the scenery :) We've been lucky to have nice weather each year too, not to hot, not too cold. So if your up to doing that one in the fall too, I'd LOVE to meet up with you!!!

    3 months ago

  • Nicia

    Thank you gladys!! If you know anyone else that would write please ask them also :) thank you very much!!

    3 months ago

  • Nicia

    Dear We Are Lupus user,

     

    Hi my name is Nicia Ramos I am 18 years old and a senior at Blackstone Academy in Pawtucket, R.I.  I am doing my senior project, on the perspective of the patient and the loved ones of patients with lupus.  If you decide you would like to contribute to my book you can write a story, poem, or even a short paragraph about your experience.  The message I want to send out to people after they read my book is that you are not alone and there are many people who have the same feelings as you.

     

    If you’re interested these are the following things you must include at the top of the story:

     

    • Name – if you wish to be anonyms write anonymous
    • Patient or loved one
    • Date diagnosed
    • How long its been since diagnosed
    • specify when the story is from – good or bad day/When the time was

     Example: Bad day/When I first got diagnosed

     

    Take pleasure while you are writing because if you enjoy it others will too.  Put your heart into it and let your feelings out.  Remember you are not alone.

     

    If you have writers block remember to look back at this to know how my book is being split up: 

     

    Patients – 1st finding out, learning about it, knowing about it

    Family - 1st finding out, learning about it, knowing about it

    Friends and Lovers - 1st finding out, learning about it, knowing about it

     

    Just remember it doesn’t matter what stage you are at we all go through different stages and we all have to do each stage one step at a time.

     

    My book is going to talk about everything we go through from the good days, to bad days, from the struggles, to the easy things, from the things we took advantage of before we got sick, to the things we can no longer do or struggle to do.  I want to let people know how this one illness opens the door to other illnesses and with your help I know my book will be successful.

     

    I am going to try and publish this book and when people buy them 25% will go to my school Blackstone Academy, 25% will go to me and my college needs, and 50% will go to a foundation for lupus patients.  I am still trying to find one so if you know any foundations that are trying to help us then please let me know.

     

    Thank you very much for your time and efforts,

    Nicia Julia Ramos

    4 months ago

  • Ati

    Hello Gladys!I am a high school student conducting an experiment to see if lupus patients who participate in online support groups or in person support groups report higher levels of well being. Your privacy will be kept and no names will be used in the collection and analysis of my data. I would really appreciate it if you would take a few moments out of your day to complete this survey. Please! Thank you for your time!





    Here's the link to my survey:





    http://www.zoomerang.com/Survey/?p=WEB22A7A8L9B5K

    5 months ago

  • james

     THANK YOU  FOR BEING ON HERE   TOOK ME  TWO  YEARS TO FIND SOMETHING 
       LIKE THIS LINE TO TRY AND RELATE  I ALSO HAVE  6 FEMALE COUSINS WHO HAVE IT    IM  A  BIRACIAL MAN HALF  MEXICAN AND HALF  CAUCASIN   MY OTHER COUSINS  THAT HAVE IT  ARE ALSO  MULTI RACIAL   MEX-BLACK  MEX -WHITE
     ALL MEX        MY AFFECTS MY LEGS EXTREMELY  I WISH I COULD FIND SOMEONE
     ELSE WITH THIS PROBLEM

    6 months ago

  • Ethel

         Hello hope you have a pain free weekend, Take care and God Bless you.

    8 months ago

  • Ethel

          Hello wanted you to know that we have been missing you. Hope you have a good weekend and God Bless you.

    8 months ago