Stacey
Patient
Last on 3 months ago
2247 points.
Silver Ninja

Journal Entry

Still flaring but still alive.

May 14, 2009

I have been fighting pleurisy for the last three weeks,  I have been told this round of prednisone taper is my last chance they are considering chemo.  I am hoping the flare will knock it off enough to avoid that before the next few weeks is up.  This higher dosing seems to be doing ok I feel it has calmed down a tiny bit but wont know til next week when I have my f/u. 

My kiddo had me fight the school for him.  They were wanting to hold him back because he has the speech issues and he's small.  I have worked with him at home and he knows everything he needs to know to move forward so we are sending him to first grade.  He is even a little ahead in a couple areas.

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  • Cheryl

    I can understand how you are feeling. I am on chemo once a month and I have been having severe chest pains that just seem to come and go. I cant stay on a high dose of steriods because they mess with me mentally now. I seem to hallucinate from them?! I have started to eat better, take daily vitamins, and drink lots of water. My lupus has done a complete turn around since I have been taking better care of myself. I dont even eat red meat anymore and I feel wonderful. I really feel normal again like I dont have lupus anymore. Also I can not forget about the glory of God. I got saved and not even 60 days later I fell sick to this disease. I chose to forget Him because I just could not understand why. Why me?! But I found a church who has proven to me that God is a healer and that he truly does love us all. Keep fighting and praying! And also keep in mind that Oral Roberts one of the worlds greatest healing Evangelist had a speech problem as a child too! I never doubt the Lord in the tests and trials we have to endure because NO PAIN NO GAIN. The pain takes us to something greater even though we might not understand in the mist of the storm.

    I will be praying for you!

    Cheryl Walker

    15 months ago

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