WeAreLupus.org - The Social Support Network for People Living with Lupus & Fibromyalgia

My senior project PLEASE CONTRIBUTE

Dear We Are Lupus user,

Hi my name is Nicia Ramos I am 18 years old and a senior at Blackstone Academy in Pawtucket, R.I.  I am doing my senior project, on the perspective of the patient and the loved ones of patients with lupus.  If you decide you would like to contribute to my book you can write a story, poem, or even a short paragraph about your experience.  The message I want to send out to people after they read my book is that you are not alone and there are many people who have the same feelings as you.

If you’re interested these are the following things you must include at the top of the story:

• Name – if you wish to be anonyms write anonymous
• Patient or loved one
• Date diagnosed
• How long its been since diagnosed
• specify when the story is from – good or bad day/When the time was

 Example: Bad day/When I first got diagnosed

Take pleasure while you are writing because if you enjoy it others will too.  Put your heart into it and let your feelings out.  Remember you are not alone.

If you have writers block remember to look back at this to know how my book is being split up: 

Patients – 1^st finding out, learning about it, knowing about it

Family - 1^st finding out, learning about it, knowing about it

Friends and Lovers - 1^st finding out, learning about it, knowing about it

Just remember it doesn’t matter what stage you are at we all go through different stages and we all have to do each stage one step at a time.

My book is going to talk about everything we go through from the good days, to bad days, from the struggles, to the easy things, from the things we took advantage of before we got sick, to the things we can no longer do or struggle to do.  I want to let people know how this one illness opens the door to other illnesses and with your help I know my book will be successful.

I am going to try and publish this book and when people buy them 25% will go to my school Blackstone Academy, 25% will go to me and my college needs, and 50% will go to a foundation for lupus patients.  I am still trying to find one so if you know any foundations that are trying to help us then please let me know.

Thank you very much for your time and efforts,

Nicia Julia Ramos