Nicia

So im losing my hair and its scary I think very high of my apperence I dont want to go bald Lupus I hate you 9 months ago

Tell us about your experience with/connection to Lupus

I got diagnosed with lupus at the age of 17 I have been in and out of the hospitel and doctors appointments trying to find a way to control it.  Its been 3 years and still I have problems.  I am currently trying to find a doctor that is better than...

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  • Gladys

    I hope you are doing well.
    Happy Holidays

    13 months ago

  • Keri

    Hi there,,..Thanks much for the heads up on this,... john1010 guy.  It's pretty evident that he has sent the same exact line of BS to several woman, including myself. 

    We have to stick together, so thank you once again...

    I hope you have a safe and fun 4th of July!!!  My mom's Birthday is on the 4th. She told me when she was a little girl she thought all the fireworks that everyone did was just for her....LOL   too cute... I guess one might think that at such a young age.  Hopefully she wasn't to disappointed when she found out the real reason....LOL 

    Take Care and Have a good weekend!!!   Keri

    19 months ago

  • Jessica

    Hi!,


    I had not had access to a computer for a while, sad I know! lol so I had not seen your post about the book. I beleive it might be too late right? aww wish I would have been able to contribute to it. Anyway I hope it all went well!

    20 months ago

  • Gladys



    • It's amazing what your goal is and I think it's great. I would love to share my story...I will be emailing you shortly. Your beautiful, hang in there. I was diagnosed at 16 and I've had Lupus for a little over 4 years now. It's tough, but I'm getting through it....each day at the time, every step of the way. Stay blessed and keep in touch, i will.


    • -Gladys

    22 months ago

  • james

    I SEE   WHAT YOU PUT  WHEN I GET HOME I LL TYPE YOU MY STORY   HOW ITS AFFECTED ME WIFE  AND TWO SMALL DAUGHTERS

    22 months ago

  • Ashley

    no problem! and i will get it to you as soon as i can!

    23 months ago

  • Ashley

    yea i will do this. i will try to write it up within the next few day when do you need it by?

    23 months ago

  • Debbie

    pictures are beautiful

    25 months ago

  • Ethel

         Hi hope your birthday turned out to be a good day for you. Pray you have many pain free days ahead and God Bless you.

    27 months ago

  • Ethel

       Wishing you a Happy Birthday and God Bless

    28 months ago