Valerie
Patient
Last on 12 months ago
477 points.
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Valerie

I hope my dr. appt. goes well tomorrow. 41 months ago
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Tell us about your experience with/connection to Lupus

“ I was diagnoised in July 2008 with SLE, Sjogren's Syndrome, & Fibro. It's been a heck of a year.  I'm finally getting used to not over doing it and taking a rest when needed, once upon a time I was constantly going, going, going...!  ”

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  • roselove1986

    Hlo welcome to my love,
    How are you today i hope you are okey.also my name is Miss roseline,i saw your profile at
    (/www.wearelupus.org) I have interest on you,i would also like to know more of whom you are and i want you to send me email on my email address (roselinembaye@yahoo.co.uk)so i can give you my picture for you to know whom l am.here is my email address believe we can move from here.i am waiting for your mail to my email address above,Remeber the distance or colour does not matter but love matters alot in life,
    yours friendly roseline.
    (roselinembaye@yahoo.co.uk)

    12 months ago

  • Tammy

    HOPE YOU ARE HAVING A PAIN FREE WEEK SO FAR!!

    23 months ago

  • Shellee

    Happy Birthday!! Hope you have a great day!!

    24 months ago

  • Shellee

    Chad Helgemoe: (friend of a friend of a friend) has a 5 yr old son
    Noah. He is in the last stages of a 2 1/2 yr battle with Neuroblastoma
    Cancer. The family is celebrating Christmas next week and Noahs request
    is to get lots of Christmas cards. Lets get him some, please send cards
    to: Noah Biorkman 1141 Fountian View Circle, South Lyon,Mi 48178 Lets
    see how many cards we can get to this little guy. Please pass this on!
    I wish there was somewhere I could write this so that everyone could
    see it but I don't know how. This is a great example of an act of
    kindness and it will only take a few mins to get a card in the mail to
    make this little guys wish come true!

    27 months ago

  • michelle

    Hi thanks for the prayers. This is something I have not had hands on doing, so I am a little nervous. As well as it is full time and I question my ability with the fatigue Lupus brings. Have to hold on to faith knowing with God all things are possible. If it is to be and I step out in faith then HE will make the way.

    Have a great weekend xo

    29 months ago

  • Jayne

    its been a long time Valerie...how have you been?

    29 months ago

  • ingridg

    Hi Valerie,

    Have you tried Restasis yet for your Sjogrens; it is a prescription eye drop for chronic dry eye.  Talk to your eye doctor to get a prescription for it.  It is pricey, but it seems to have really good results.  My eyes were too far gone by the time I got the RX for it.  Also, for dry mouth, try any Biotene product.  The mouthwas and gel is good.  Walmart and Target carries it.  Good luck!

    Ingrid

    36 months ago

  • Lupus

    Adult & Pediatric Lupus Symposium at UCLA

    Date: February 28, 2009
    Location: Ronald Reagan Hospital at UCLA Medical Center

    CALL TODAY!
    Attendance to the symposium is FREE
    however you must pre-register by calling
    888/532-2322 or 949/833-2121.

    Lupus International is honored to have several world renowned physicians discuss as a panel and individually about lupus and its effects on the body.

    Robert Lahita, M.D., Ph.D is the Chairman of Lupus International's Board of Directors. He serves as a Professor of Medicine at Mount Sinai Medical School and is currently a senior attending physician at Saint Vincent's Medical Center in NYC and as an adjunct Professor of Medicine at the New York Medical College. Dr. Lahita is also Chairman of the Department of Medicine at Neward Beth Israel Medical Center. The Textbook of Autoimmunity, which he edited, is the seminal work on the subject for medical professionals, and he is also the editor of the recently published fourth edition of the standard textbook Systemic Lupus Erythematosus. He has appeared on Good Morning America, CBS This Morning, Today, and Regis & Kelly. Named one of New York magazine's Best Doctors in New York for the last five consecutive years.

    Bevra H. Hahn M.D. is a Professor of Medicine, Vice-Chair of the Department of Medicine, and Chief of Rheumatology at the School of Medicine at the University of California in Los Angeles. She serves on Lupus International's Medical Advisory Board, and is a Member of the Clinical Advisory Board of Alder Biopharmaceuticals Inc. She has served on the editorial boards of the Journal of Clinical Investigation ... and the Annals of Internal Medicine. Dr. Hahn has authored more than 100 peer-reviewed research papers and over 40 book chapters or reviews, and has served as co-editor of the influential textbook, Dubois' Lupus Erythematosus.

    Deborah Mc Curdy, M.D. is the head of the pediatric rheumatology department at UCLA as well as the fellowship program director. She also serves on Lupus International's Medical Advisory Board, and received her medical degree from the Hahnemann University School of Medicine. She trained in Pediatric Rheumatology at Children's Hospital of Los Angeles and has been practicing pediatric rheumatology for twenty years. Dr. McCurdy is heavily involved in the education of fellows, residents and medical students. In addition to her clinics at UCLA-Westwood campus, she also holds clinics at UCLA Harbor and will be starting a clinic at Olive View as well. Dr. McCurdy also organizes the monthly "Lupus Clinic" at UCLA in conjunction with Dr. Ora Yadin of the pediatric nephrology department at UCLA. Her research interests include DNA repair in systemic lupus erythematosus and candidate genes in the pathogenesis of JRA and SLE.

    The panel along with several lupus patients will discuss a variety of topics related to lupus SLE and its effects on the body. Topics to be covered; Pregnancy and Lupus, The Kidney and how it is affected by lupus, CNS Lupus, Research Advances and the Future of Lupus, and Coping with Lupus.

    The day will be broke down into sessions and an open discussion forum including the afore mentioned physcians as well as Drs. Grossman, Shaham, Yadin will take place before lunch and as a finale to the symposium. A sincere thank you to Dr. Deborah Mc Curdy, chief of UCLA's Pediatric Rheumatology Department, and her staff for preparing and organizing this event along with Lupus International.


    Ronald Reagan Hospital
    Auditorium/Conference Center
    757 Westwood Plaza
    Los Angeles, CA 90095

    February 28, 2009
    9 a.m. to 4 p.m.

    36 months ago

  • katie

    Hey Valerie!! I how are ya doing? I hope you are having a pain free week!! I just wanted to drop by and say hello, and see how you are doing!! Laughing

    Ttyl,

    Katie

    40 months ago

  • katie

    Hey Valerie!! Six kids!! I don't think I coulda done that lol.. kudos to you!! I hope you are feeling well, and you're having a pain free weekend!! I love the pic of your baby and cat!! I have a cat that looks just like that!! However, she isn't so friendly lol.. just with meCool I hope to get to know ya better!!

    Gentle Hugs,

    Katie

    40 months ago