maria
Patient
Last on last week
646 points.
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maria

fell behind again...but is back last week
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Tell us about your experience with/connection to Lupus

“I've had lupus with kidney involvement for over a decade now, avoided transplant & dialysis, have remained at 100% function and acknowledge every day that it's only a part of who I am -some days more than others... ”

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  • Tammy

    HELLO AGAIN MY NEW FRIEND... NO WE DO NOT GET THAT MUCH SNOW IN GEORGIA!! WE ARE LUCKY IF WE SEE SNOW ONCE A YEAR!! SO THIS YEAR WAS A REAL TREAT SINCE IT WAS MORE THAN WE WOULD NORMALLY EVER SEE. I AM FEELING MUCH BETTER THIS WEEK THAN I HAVE IN A LONG TIME. HOPE IT KEEPS UP!! BUT I KNOW HOW I END UP I DO WELL FOR A WHILE AND CAN GO FOR DAYS THEN BAM!! I'LL BE RITE BACK DOWN AGAIN FOR A WHILE. THATS JUST THE WAY THIS STUFF SEEMS TO MAKE ME FEEL. BUT I ALWAYS APPRECIATE THE GOOD DAYS!!
    HOPE YOUR WEEK IS GOING WELL.  

    2 weeks ago.

  • Tammy

    HELLO NEW FRIEND..

    3 weeks ago.

  • Shellee

    Chad Helgemoe: (friend of a friend of a friend) has a 5 yr old son
    Noah. He is in the last stages of a 2 1/2 yr battle with Neuroblastoma
    Cancer. The family is celebrating Christmas next week and Noahs request
    is to get lots of Christmas cards. Lets get him some, please send cards
    to: Noah Biorkman 1141 Fountian View Circle, South Lyon,Mi 48178 Lets
    see how many cards we can get to this little guy. Please pass this on!
    I wish there was somewhere I could write this so that everyone could
    see it but I don't know how. This is a great example of an act of
    kindness and it will only take a few mins to get a card in the mail to
    make this little guys wish come true!

    4 months ago

  • Summer

    Hi Maria thanks for getting back to me, although I was a bit confused by your note on my profile. I guess I am having a bit of a Lupus fog. I hope all is well with you and I hope that you have a great weekend!!



    Take Care



    Summer

    4 months ago

  • Summer

    Hi Maria I am glad that you have something to look forward to. What type of book club is it? Well my friend tomorrow is the day that I pick out a dog to adopt in our local animal shelter, it always breaks my heart to see so many dogs needing to be adopted and cats also. I want to let them all free! Oh well I know that I can at least rescue one dog that is in a cage that deserves a loving home which he or she will get from me. Wish me luck!!



    Thanks and I hope to hear from you as soon as you are able



     Take Care

    5 months ago

  • Summer

    Hi Maria, I hope that you are doing well. Please cross your fingers for me, because next week I see another Rhumie, which will be my sixth. This this time however I am going  to go to the consulations with prepared questions.

    I hope that you have a great weekend!!

    6 months ago

  • wrightrs

    Hope you have a good day. I've been tired the last two days. Had to sleep a lot. Just trying to do a little at  a time.  My Mom is needing me to help her with more and more things. 

    6 months ago

  • wrightrs

    Hope you had a nice weekend and  have a great week

    6 months ago

  • Summer

    Hi Maria I wish for you the same as I found out  on Friday, my liver labs became normal again, what a relief. I really hope that you are having some better days and will have even more greater days, that is my wish for you!

    Take good care of yourself

    6 months ago

  • Tameka

    It's a pleasure to meet you too!  I'm going well.  Sometimes I get frustrated but I try not to let the lupus get me down.  I hope you're having a good weekend!

    6 months ago