Madeleine
Patient
Last on 12 months ago
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Madeleine

People dont see us as sick... 36 months ago
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Tell us about your experience with/connection to Lupus

“Still no diagnose. Well ok,several,but not ONE explaining everything. Antiphospholipidsyndrome with bloodclots every now and then.On warfarin.Really hard planning your life/carrer/income as it can change from one day to another.Positive thinking is the only thing that will keep you floating though.”

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Results 1 - 4

  • roselove1986

    Hlo welcome to my love,
    How are you today i hope you are okey.also my
    name is Miss roseline,i saw your profile at
    (/www.wearelupus.org) I
    have interest on you,i would also like to know more of whom you are and i
    want you to send me email on my email address
    (roselinembaye@yahoo.co.uk)so i can give you my picture for you to know
    whom l am.here is my email address believe we can move from here.i am
    waiting for your mail to my email address above,Remeber the distance or
    colour does not matter but love matters alot in life,
    yours friendly
    roseline.
    (roselinembaye@yahoo.co.uk)

    12 months ago

  • Stina

    Hellooo...

    I have never been on warfarin, the doctors always mention it, but I never needed it I guess. Although... when I was pregnant I was on Heparin. I've never had a problem with clots probably because I also have Thrombocytopenia (low platelets) Its all so complicated for me... I only understand 1/2 of what they try to explain to me haha...

    YES! I do miss San Diego, its going on my 4th year living in Las Vegas. I just really really want to move back to California.

    Im so sorry to hear that you are in the hospital. I hope you feel better soon. Take care!!!

    35 months ago

  • Stina

    thanks for adding!!! have a good weekend!

    35 months ago

  • blueeyes

    Hi Madeleine
    Thanks for your response. I have been having alot of trouble with food. I seem to have problems with dairy, peppers, spices, oatmeal. I eat alot of chicken noodle soup and apple sauce. I have been trying to eat salmon, but I really don't care for fish. I would really like to try the Lupus Recovery Diet though because I have heard alot of positive things. What other foods do you have a problem with, if you don't mind me asking? Well, I hope you are having a great day and thanks again for your response.

    35 months ago