Jenn
Patient
Last on 32 months ago
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Jenn

is planning a project for her Support group 32 months ago

Tell us about your experience with/connection to Lupus

“I was diagnosed seven years ago and it has been a struggle since then. I currently am SLE, Dermatamyositis, Thyroid Disease (hypo), elevated platelet count, have a nodule in my left thyroid and 2 small ones in my right, degenerative disc disease, arthritis, raynauds syndrome, calcuim deposits in my right...”

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  • roselove1986

    Hlo welcome to my love,
    How are you today i hope you are okey.also my name is Miss roseline,i saw your profile at
    (/www.wearelupus.org) I have interest on you,i would also like to know more of whom you are and i want you to send me email on my email address (roselinembaye@yahoo.co.uk)so i can give you my picture for you to know whom l am.here is my email address believe we can move from here.i am waiting for your mail to my email address above,Remeber the distance or colour does not matter but love matters alot in life,
    yours friendly roseline.

    12 months ago

  • Ethel

    Wishing you a Happy Birthday and also wanted to say that we miss you. Take care and God Bless you.

    26 months ago

  • Tyasia

    hey jen i live in richmond,va. keep me posted on ur plans of starting a support group in va

    31 months ago

  • Lauren

    Hello dear,

    I wish for your recovery...

    Surgery is difficult enough, but when you have Lupus...

    I'm not feeling well as of late...

    It seems my fatigue has worsened, tremendously, and my hair is getting thinner...

    I don't know why...

    I hope this isn't related to my kidneys, as they are in remission...

    Even so, I'll see my rheumy in May, and my nephrologist in June...

    I'm guessing there's nothing they can do, if my kidneys are still in remission...

    Because I'm already on CellCept...

    Unless they offer Prednisone, which I won't take...

    My experiences with "P" were worse than my experiences with Cytoxan!

    Seriously.

    Even so, enough about me. I hope you are recovering. Know I'm thinking of you. :-)

    XOXO.

    33 months ago

  • Lauren

    Hey there dear,

    I'm sorry its' taken me long to respond...

    I'm sorry to hear about your surgery...

    Just know, I'll be thinking of you, and praying, too...

    This depression just devours me; the sadness, worthlessness, hopelessness...

    And it doesn't matter that I'm surrounded by wonderful people...

    It always makes me feel so... alone.

    But, I don't want to complain.

    I just want you to know I'm thinking of you.

    :-).

    XOXO-

    Lauren

    35 months ago

  • Lauren

    I'm doing... so, so to be quite honest.

    I just met with my WRITERS' Group, which was lovely.

    But, I've been uber-fatigued as of late.

    And quite depressed.

    I'm hoping that will change.

    And, of course, I hope you are well too.

    X-

    Lauren ~ARTEMIS~

    35 months ago

  • Gladys

    your so pretty...how are you doing?

    35 months ago

  • Julie

    Hi Jenn, I've been okay.  Just been going through TONS of bloodwork lately!!  I feel like a pin cushion!, I'm sure you can relate.  Docs had thought I may have non-hodgkins lymphoma, ruling that out... just really tired and all, but doing well otherwise.  How are things with you???  Having tough times?? What is going on?   I hope everything is okay... let me know.  Jules

    36 months ago

  • Lauren

    Hey Jenn,

    I just left you a long comment on MYSPACE.

    Forgive the length... LOL.

    I hope you feel better, I'm thinking of you my new friend.

    XXXX-

    Lauren

    36 months ago

  • Julie

    Thanks Jenn!!!  When I was first diagnosed, I always was looking for a book like this on the shelves, a book about a real life story, someone who I could relate to and understand who knew what the heck was going on!!  I'll keep everyone posted!!!  Hope you are feeling well!!

    Take care!  Julie

    40 months ago