katie
Patient
Last on 2 weeks ago.

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katie

Crossing fingers I don't have mono

2 weeks ago.

Tell us about your experience with/connection to Lupus

“Where or where should I begin... I was officially dx in March of 2004. I had just had surgery, to have my deviated septum fixed, and my sinuses reconstructed. I went home that night, after the surgery, I couldn't sleep, I was swollen my face was beet red, and the...”

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Displaying 1 - 10 out of 23 comments
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  • Courtney

    Hi Katie!

    For me it all did come out of the blue. I felt fine, I never had pains in my joints or any other symptoms. I did have some fatigue but I just attributed it to me working full-time, taking 3 classes in grad school, and also doing an internship 20 hours a week. But I am glad that I was diagnosed quickly and didn't have to experience the long drawn out process that so many other people have had to deal with. 

    I have been feeling better, overall. I started back to work last week, only 20 hours a week. And so far I have been handling it well, I am a little tired by the end of the day, but I am also trying to fit me exercise routine in everyday as well. I just you can say I still haven't learned my limitations! 

    How are you doing? Is your rheumatalogist by chance located at the Cleveland Clinic? That is where all of my Doctors are located now! I hope all is well with you! Keep in touch!

    Court

    4 weeks ago.

  • Katrina

    Hey!

    How have you been?

    I haven't been on here a lot. My dance studio just did The Nutcracker last weekend so my life was taken over by that. I can't wait until Christmas vacation.

    4 weeks ago.

  • Katrina

    Gettysburg was greeaatt. Some pretty freaky stuff happened though. I got some pretty cool pictures. I wait for that trip every year. I didn't get home unitl 1:30 AM though and then I woke up with headache so I skipped school. Haha.

    Your son sounds just like my younger sister! My mom will take us shopping and I could shop for daaaaaaaaaayyss and my sister is always just like.. Mom I don't care what we get blah blah blah.  I guess I'm the high matinence one of the family Laughing

    2 months ago

  • Shelley

    Hi Katie, didn't know you were on butterflies, I will have to find you on there. how are you doing today? Hope today is a good one for you!

    2 months ago

  • Jenni

    Thankyou Katie for your lovely comment and also for the reasureance that there are people out there that undserstands you. I can relate to the lonelenness I lost all my friends over a period oft time while suffering with the diease so long and not knowing what it was till recently.Though I knew deep down what it was and so did my daughter and she was only 14. I can't write much because I am haveing a big flare up now but I would like to keep in contact and become friends if you like

    hugs

    Jenni

    2 months ago

  • Katrina

    Thanks Katie. Thankfuly  it is the weekend.

    I'm going to a fieldtrip to Gettysburg  on sunday to ghost hunt. I 've been looking forward to this so things are a little better.

     

    <3Katrina

    2 months ago

  • Valerie

    Hi Katie! All is well my way. Hope you are doing great!

    Val

    2 months ago

  • Katrina

    Hey I'm glad to hear all is oging well for you!

    I'm having a tough week in school and with other things but at least it's almost the weekend!

    Talk to you soon

    <3Katrina

    2 months ago

  • Shelley

    Hi Katie ! I am close to St.Clairsville, Ohio and 20 minutes from Wheeling, West Virginia. I am only 45 minutes from Pittsburgh, PA. That is why Biden and Palin were here for a rally. Hit 3 states at once. Ha ha. I am doing okay today other than my temporary crown on my tooth fell off at lunch. Good thing I have a dentist appointment tomm.The only bad part I will be sore for days afterwards..yikes. How are you doing?

    2 months ago

  • Katrina

    Uhm...when  I got mine pierced I bought H2O Ocean Spray or something like that. I put that on it and it's basically just a sea salt mixture and they said if I didn't want to use that to just us a liquid soap like dial but they said stay away from the scented ones that aren't anti-bacterial. Also, in a little while when you are able to change it, they told me to put a&d ointment on it just to keep everything moist. So I do that when I change it. I just had to take my bellybutton ring out because it's migrating too close to the surface =[ I hope that doesn't get infected.

    2 months ago
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