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Last on 16 months ago
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Kaitlyn

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Tell us about your experience with/connection to Lupus

I am going through testing for lupus right now and am so nervous about everything. Well the doctors are actually testing for lupus, cancer, or a blood disease. but the more i read about lupus the more i am convinced this is what i have ! please help!

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  • roselove1986

    Hlo welcome to my love,
    How are you today i hope you are okey.also my name is Miss roseline,i saw your profile at
    (/www.wearelupus.org) I have interest on you,i would also like to know more of whom you are and i want you to send me email on my email address (roselinembaye@yahoo.co.uk)so i can give you my picture for you to know whom l am.here is my email address believe we can move from here.i am waiting for your mail to my email address above,Remeber the distance or colour does not matter but love matters alot in life,
    yours friendly roseline.
    (roselinembaye@yahoo.co.uk)

    12 months ago

  • maurilio44

    I'll pray for you and good luck.    Thanks Maurilio44

    17 months ago

  • Gladys

    Welcome to the site....Feel free to get involved and say hello.



    Read your story...stay positive & try to hang in there. The diagnosis can be very difficult at times.....patience is key & make sure to go to other doctors for more opinions & try to do your own research. It helps for you yourself to be more informed with your condition.



    Lots of Love,



    Gladys =)

    18 months ago

  • isabelle

    hang in there babe..im in pretty much the same boat..



    ill b thinking of you :)

    18 months ago

  • sara

    hi katily, i wish i could help you more, but i dont know much myself.  im being tested for a drug induced lupus.  i took remicade for my crohns disease and one of the side effects is "induced lupus" which thankfully is reversable.  i still dont  even know if that is what it is!!  i had a positive ANA   it was 640.  was your ANA positve too?   i hope you are feeling okay!! talk soon



    sara



    PS- this site doesnt seem to be very active. i use wearecrohns.org and its much more active, there is always someone on there.  

    18 months ago