WeAreLupus.org - The Social Support Network for People Living with Lupus & Fibromyalgia

Fashion for Lupus needs the input and support of everyone form anywhere around the world!

Hi,
I wanted to invite you to join and support us at Fashion for Lupus and Other Autoimmune Diseases. This event will be huge, lots of fun, and informative. The event is held at UCIrvine's Pacific Ballroom on October 3rd. We would love to have you! Tickets (very affordable! as low as $10) can be purchased now at www.careforautoimmunity.info. Our funds will go toward local public education workshops, some community service activities, supporting our club, the Alliance for Lupus Research, LupusLA, and maybe the Lupus Foundation of America.
We are also making an informational video to be shown to everyone who attends (we are hoping to fill our house with 600 people, but really need your help in advertising; let me know if you think you can help us get the word out and I will send you more information and things to use to help) and I was wondering if you could answer some questions for me so that we could use your input to better help those who suffer from lupus. Please reply to this message with a response to these questions:
1-What should people with Lupus do?
2-What should the public do to support people with Lupus?
3-What should the families of those with Lupus do for them?
4-What are some concerns (work, family, friends, social-life, outdoor-life, personal-life, spiritual-life, etc) that people with Lupus have (anything that Lupus affects... and what your feelings are about it)?
5-So far, have you been able to find relief?
6-Have you found a good organization that has been helping you? Support groups?
7-What would an organization do to help people with Lupus?
8-What do you wish was different about a life with Lupus?
I really appreciate your input. And if you don't have Lupus yourself, but know someone who does... answer the questions about your own feelings about the diseases and those affected (including you).
We just want to help people with Lupus, but need to know what you want too!
I would love to have the opportunity to meet you at our Fashion Show and look forward to your responses to the general questions above.
Please help us advertise for our event. Put our fliers up everywhere! Please give us the chance to get the word out to the public, get them there, and educate!!!
Please feel free to contact me via email at l******@yahoo.com and call me at 7142997942. I'd love to hear your input and feedback!
Sincerely,
Tandis Soltani