Stina

you might flare more being preg or have extreem preg symptoms like i did... just listen to your dr & if hes anything like mine was you will be ok. i had to be on high risk care & was at the clinic twice a week... i also had to inject myself twice a day w/ heprin due to a blood disorder called thrombocytopenia.

18 months ago

Dawn

I'm currently 26 weeks and honestly, have felt BETTER for most of my pregnancy than I do in my everyday life.  I was nervous because the 1st thing the doc did was take my plaquenil away and I've always ended up hospitalized when I stopped plaquenil.  I'm still taking 10 mg of prednisone daily along with my vitamins and supplements.  And I had my typical August flare, which I'm trying to get through right now.  (My flares typically involve very sharp chest, neck, and shoulder pain.  I used to have joint swelling, but I haven't had that in awhile.)  I was told - before getting pregnant - that 1/3 of patients get worse, 1/3 get better, and 1/3 stay the same.  There are dangers and side effects that CAN happen, but I chose not to be afraid and just assume the best.  So far our baby is growing on schedule and couldn't be healthier.  My husband swears this will be our one and only, so I am staying focused on enjoying every day of my pregnancy.  I may not get the chance to do it again  :)  We're planning a perfectly normal, natural birth at a local birth center and my OB and Midwife team have no concerns about Lupus effecting my baby at this point.  Congrats and ENJOY yourself!  Try not to read too much or listen to negative tales.  Stay in touch with your docs and go with the flow.   

17 months ago