Headaches

posted 22 months ago by memelissa

I'm having headaches daily. I mean I wake up with one and when I finally fall asleep I still have it. I am now seeing a headache specialist but I don't go back to see him until April 22. I'm trying to get any and all ideas and advice to take with me. No Meds have taken this headache away. I've now had it for 4 or 5 months I think before then I was having the headaches about 4 times a weeks for months and months.. They have done a CT was fine and just did a MRI and I haven't heard anything about it yet. Sometimes they get worse then others but on a normal basic on a scale of 1 - 10 it is at least a 5. Its driving  me crazy. I feel like I'm losing my mind. I mean I really feel like my brain is shutting off or something from hurting so much.. Light and Sound doesn't make it any worse. I have looked at foods n drinks n nothing seems to change it. I'm now on nothing to drink but water or juice or milk headache wanted to try this still no difference...          Any ideas anyone PLEASE


I'm sorry if this doesn't sound right.. I just really hope someone understands what I'm asking... I'm just so tired of my head hurting... 
I was dxed with lupus in 2002
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  • Margie Lee

    it is going to sound odd, but a sleeping pill helps my headaches. My doctor is at Vanderbilt and is a migraine specialist. He recommends, and takes, nortriptiline. It has helped me quite a bit.

    20 months ago

  • Melissa

    Thanks Margie. 

    They did start me on that about 7 weeks ago and its not helping. I wish it would. 

    20 months ago

  • Tammy

    How are you doing now?  I have suffered from headaches and migraines for years even prior to being diagnosed with UCTD... I am on a regular dose of topamax.  Have you tried that?  It seems to help at times, and then there are other times that I still have my phases of the migraines. I have pain pills and nothing helps.  Would love to hear how you are doing. 

    19 months ago

  • Melissa

    I'm still having headaches all the time.. The really bad ones are at least 2x or more a week. I have tried topamax.. It didn't help any at all. It doesn't seem like a migraines until it gets really bad and then I'm not sure just hurts to bad.. I have had alot of test done but no help yet. I go back to the dr on the 16.

    Thanks for asking... /

    19 months ago

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