Who thinks Lupus needs more recognition?

Poll Started September 20, 2009 by Sarah McKito

Who thinks Lupus needs more recognition?

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  • Sarah

    I have been trying for years to get the word about Lupus out there.

    29 months ago

  • Lilykat

    We should all try to teach others about Lupus, even if it's just our families.

    28 months ago

  • Margie Lee

    I agree completely. I wear my bracelet and explain it to everyone. I saw a boy with one on the other day (in a Borders bookstore). I spoke with him about it. His sister has lupus and he tries to educate people as well. If enough of us talk about it, we will get the word out.
    I do have to add a question. Have any of you noticed signs about lupus in your area? my brother lives near Clarksville, Tn and I have seen more lupus signs in that town than in the entire state of Tennessee...they have about six or seven (and some are in Spanish!). I wish every city/town would have those.

    28 months ago

  • Lilykat

    Really? That's great! I actually have seen a few billboards for Lupus awareness here in CA...even my own! :) I was a part of the campaign. And although I have never seen the commercial on the television, several friends and family all over CA have told me they've seen me on tv.

    28 months ago

  • Shellee

    I am very active with the Lupus Foundation of America's piedmont chapter. I go to all the health fairs in our area and talk to people about lupus and am trying to get us to go to more colleges and high school to tell people about lupus! I will be going to Washington DC in March for our advocacy day to talk to congress about lupus! I want to do anything and everything to bring more recognition to this disease! The more awareness there is I think will help us to get more funding for research!!!

    27 months ago

  • Stacey

    It was ridiculous a few months ago when I told someone that I had Lupus and she actually said that her brother had gotten it from his wife.  My mouth hit the floor she thought it was a STD!  Even after I explained to her that she must be mistaken on what her brother has and what SLE is she finally went oh wow.  Most of my family and friends all know I have it and now know what it is and does to the body.  

    22 months ago

  • Samantha

    I have been trying to spread the word like crazy. I make youtube videos, and basically have a little support group on there. If you search lupus on youtube my video is the first one! We're now starting a group called The Young Colors of Lupus in Nevada. Still can't believe how many people have no idea what lupus is.

    21 months ago

  • Gladys

    Lupus & Many other Conditions that are not always detected right away......It's very important, It could help save many lives =) Awareness is KEY!

    17 months ago

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