WeAreLupus.org - The Social Support Network for People Living with Lupus & Fibromyalgia

Jayne

I was married in Nov. 1996, dx with lupus in Feb. 1997 and we were divorced in March 1998 :(

HOWEVER, we got married again in 2004 and are much happier now :)

5 months ago

Joy

My husband is a saint. He married me knowing that I had Lupus. We have four kiddos (15, 13, 9 and 7) and we are just as happy now as we were the day we got married.

5 months ago

jesusfreak44

I found out I had Lupus January of 2004.I told my fiancee I had Lupus and I said you don't have to marry me because we know what is ahead of us.He said I love you no matter what.I am here for you no matter what and to take care of you!!We got married April 24 th of 2004.He is my rock and takes very good care of me.I am very blessed.

5 months ago

Barb

I was diagnosed with Lupus a couple of years after we were married.  My husband accepted my condition and loves me for who I am, not what I can and can't do.  He's been a saint through these 20 years, always helpful and buying the necessary things (wheelchairs, etc.) as soon as I need them.  No one could ask for a better mate and I have been truly blessed.  I thank God each day for the man I  married.

5 months ago

Beverly

He wil look at me when I get home from work and say Nap time? and tell me to go to bed and get some rest I love this man he is a saint.

5 months ago

rhonda faye

5 months ago

rhonda faye

hello everyone and the man in my life is great and has been with me for 30 years and when i got lupus he was great and understands alot and knows the pain i go through.love rhonda t

5 months ago

Elyse

I was diagnosed less than a year into our marriage. He had a really rough time accepting and understanding it, but has gotten to be my best resource and support.  We just celebrated our second year of marriage last month :)

5 months ago

Dee

My husband is the greatest. I tried to give him an out of the marriage because as a nurse I knew what we were facing. His love and caring for me over the last few years has been what has kept me going during my worst flares. We have been married about 30 years and I couldn't do it without him.

5 months ago

Nissa

I was sick when my husband and I met, but we didnt know what exactly was going on. Then and now, he is has been my rock. He is very understanding and helps me to make healthy decisions. He is always encouraging and never critical of the things I can or can not do. He does everything he can to make my life as easy and happy as possible. I am so very truely blessed that we found each other. I could not ask for a better husband...

5 months ago

Nytewatchyr

My husband is the reason I was FINALLY taken seriously by my family and my doctors.  His mother had lupus and he recognized my symptoms as I was trying to recover from the flu.  He's the one that talked my dermatologist into running antibody blood tests.  And he married me well after my diagnosis.  :)  My ex??  He thought I was making it all up...

5 months ago

Angie

My son's father, whose extreme ambition has led to a bank presidency, literally disappeared . I would not be going to Med School. He would have little sympathy for the weight gain, rash and hair loss on his once size 2, long haired "trophy." I had another "almost" committed relationship that never materialized for other reasons. He later admitted that he felt he was falling in love, but the fear of my lupus kept him from giving in to his feelings. I haven't allowed myself to seek or consider serious relationships since.  Just before this last major episode which left me bedridden for so  long, I had 2 generous suitors competing for my attention. Not long after I came home from my 2 month hospitalization they "disappeared."  I had warned both of them about the long term realities of my illness beforehand, but they could not see this attractive lady suddenly changing overnight. All this has been very painful. For the most parrt I have been content. I have prioritized what little energy and money with raising and home schooling my son  using most of it.. No one to answer to, no conflicts or drama in the house, I have enjoyed time, freedoms and independence  that some of my married friends envy. Now my son's will be graduating high school  a year early with good grades, high tests scores, I don't regret the opportunity I was given by my losses, being able to take credit for personally molding his charactor and intellect. With this accomplishment I am about ready to make time for a long term "companion"

5 months ago

Kara

My fiance is my most wonderful supporter. He is going to marry me August 30th knowing that I have lupus and that I very well could struggle with it for the rest of my (our) life. But he loves me just the same!

4 months ago

Shelley

My husband and I were just dating when I was first diagnosed some17 years ago. He vowed to stay even though the future was so uncertain. He has taught me what unconditional love is. He has never complained about my changing looks (weight gain, hair loss) He has and still does see me as the person he fell in love with, and for that I am very grateful.

4 months ago

katie

3 months ago

katie

My ex-husband knew before we got married that I had Lupus, and said he could handle it .. but seeing how he is now my ex-husband.. you see he couldn't handle it.. I haven't been able to really find a man who understands or even wants to be with me, because of all the issues I have. This makes me sad, and really makes me wonder what my future really holds for me..However, my son bless his lil heart always tells me he will always take care of me when he gets older....I guess that will be the only man I can truely count on..

3 months ago

Crystal

I told my boyfriend he didn't have to stick around when I found out I was sick, but he stayed. Until I started prednisone and had all those mood swings and was depressed from it. He couldn't handle me breaking down. So he left.

2 months ago

LaVerne

I have a great partner, who is very understanding and considered.  When I am hurting she is there holding my hand and doing whatever can do to help me feel better.  She always telling me how much she loves me and how happy she is to have me in her life.  What more can a woman ask for.

2 months ago