WeAreLupus.org - The Social Support Network for People Living with Lupus & Fibromyalgia

Gladys

The reason is ask this question is because I know a lot of people who don't have insurance & beacause of that, they don't go to see a doctor. That is one of the biggest mistakes of my life, not having insurance, (although i was an adolescent & it was up to my parents to make sure i was covered), the hospitals bills & medicals bills really put my family in dept big time! But eventually (by God's grace) I was able to get donations from several charities & organizations & majority of it is paid off (over 9,000) I don't know what my family and I would of done without the help of those different charities & organizations that helped pay it all off...you can imagine being in the hospital for 5 months without insurance....but I love the hospital I go to..sadly to say..it's like my second home...everyone knows me there..so my family & I felt very comfortable there.

4 months ago

Kara

I am definitely VERY thankful for my insurance plan!

4 months ago

Sarah

Yes, thank goodness. I don't know what I would have done, if I did not. :(

4 months ago

Sofee

I didn't have insurance but the doctor that diagnosed me was an angel, he told me that until I can get insurance he would see me for free at his office.  He saw me there for over a year.  Today though I have coverage at my the general hospital all for free again so that's the best part at least.  But I cant get regular coverage through any insurance companies because of the preexisting condition, I think that is the most inhumane thing in the world.  Insurance should be for everybody no matter what, if you can pay you should get it.

4 months ago

Gladys

I agree with you...my mom & I were having the same problem about the "pre existing conditions"...when you think about it..it's ridiculous, because a lot of people are without insurance because of that...it's pretty sad!

4 months ago

Shelley

I had insurance through my parents when I was first diagnosed, thank goodness. However I do not have insurance right now. We are self employed and the insurance(if you can even get it )is outrageously priced! This adds alot of stress on me, I worry about getting ill.

4 months ago

Allison

I was at a bad point when I was diagnosed with Lupus. I was a single Mom who was self employed. I had tried to obtain health insurance through 9 different health insurance companies. I was denied every time. I have a blood clotting disorder called Factor V Leiden. I have been on Coumadin since 2001.  I was diagnosed with Lupus in 2003 and then had numerous issues with doctors who either did not know about Lupus or did not want to be bothered by me having due to no insurance.  I was blessed to be married in 2006 to a man who has  nsurance and that has helped me find quality doctors.  I am very lucky now.

4 months ago

Gabbie

for a  pre-cond for kasier is $300+ a  month

4 months ago

Ashley

The insurance system in the US is disgusting, but what are we to do right? I work in a pharmacy and watch all these elderly people with Medicare part d, paying out their booties for their medications, while young people come through the drive thru on Medical (medicaid,for all other states but cool cali, that had to make up its own spiffy name...lol) driving their escalades, talking on their i-phones, I don't know to me it just seems a little wrong. Especially, like for me, I did not have insurance when I was first diagnosed and am still paying for some of the tests and other things, I actually waited out a lot of my treatment until January, when my insurance began, which is why I ended up so messed up... and then of course, one of my BIGGEST fears is not having insurance and wtf am I going to do!

3 months ago

Gladys

i know I agree,,,that's why we need to go out and vote & pick the right PRESIDENT...lol...because the prices for insurance are ridiculous...but I can't afford not to have insurance because my meds and treatments are VERY EXPENSIVE...and so are my doctor & hospital visits...

3 months ago

Essie

Gladys, you said it!  What we are to do is to use our rights as citizens of this country to help pick the presidential candidate who has the most comprehensive, beneficial plan to provide health insurance for everyone.  I cannot stress that enough!  If there is  ANY chance we won't be healthy enough to make it to the polls on that first Tuesday in November, we must check our state dates for early voting or get an absentee ballot.  There is no other country in the western world that lacks comprehensive health insurance for all its citizens.  We Americans get what we vote for.  This applies not just on the national level, but to our state representatives as well. 

3 months ago

Trish

Thankfully I married and got on my husband's insurance years before being diagnosed. He is self employed so are premiums are through the roof.   Even with insurance I ended up with some large bills from a few emergency room visits and 2 of my prescriptions are considered "experimental" and are not covered by insurance.   Thank you Blue Cross! They run and extra $150.00 per month. 

 

3 months ago

Nicole

I had insurance under my parents. Now, bc I am a grad student, I don't have insurance. I really don't know how I can continue to do this. I recently was in the hospital for a week and the bill is terribly high. I had some bloodwork done a couple of weeks ago and it was around $1300. I can not get health care because it is so expense due to my illness or either I just simply get shut down. I could get it through my school, but it does not cover a previous illness(why else would I need it..lol). Right now life is just difficult. But I know that there is a light at the end of the tunnel. I agree about the national health care issue. There are many Americans that do not have health care and have lupus or related disease. Not only would national health care help with us, but also many of the countries with national health care also have higher tests scores than we do(I'm studying to be a school psychologist). We are really behind the rest of the world with this issue.

last month

Nicole

It is sooooo important to have medical insurance!

 I am a nurse and also worked in the medical insurance filed. There are private policies and Group policy coverage through a job.  Lupus, along with many other illnesses in many states is an automatic decline if you would apply for private coverage. In that case it's best to work somewhere part time if they offer benefits and have group coverage so you can be insured.  There are also some hitches, if you haven't been covered for a certain amt of time and sign up for group coverage, there can be waiting periods put on coverage of conditions for a certain amt of time and I think wavers and riders also.

 Check with your insurance company, read your policies information, check with your state insurance laws.  Make sure your options and rights....

last month