WeAreLupus.org - The Social Support Network for People Living with Lupus & Fibromyalgia

Anteaters

I'm sorry to hear these stories. I believe that the public really needs to be educated on the issue of Lupus and know how to deal with it and know how to react! My mom was diagnosed almost 10 years ago. I have started trying to raise awareness through these annual fashion shows. Please help me and my group of supportive college students at UCI make a change! Give me your input and your ideas, advertise for our event on all of your social networking pages, let me know if you have any connections that we could use (fashion industry, press, caterers, anyone!), and attend our event! We are trying to fill 600 seats and bring everyone an unforgettable night of awareness in a fun and easy way that they will talk about with everyone they know (which would even further help raise awareness)! Please contact me at l******@yahoo.com. Visit our website for more info and to purchase tickets at www.careforautoimmunity.info

5 months ago

jade

Same here, im 33 years old and never had a boyfriend. I was diagnosed 10 years ago and my life and perspective about having my own family is scary. I date men but to the point of serious relationship i always run and dont tell then the reason why. At least im not alone.jade

9 months ago

Jessica

Well to be honest I have not ever had a real stable boyfriend or anything like that. I dont know if it is because of haveing lupus or more because of the effects lupus has had on me, for instance over weight. And the truth is that there has been times when I get really close to a guy friend and it seems as we might just start dateing, then I tell them I have lupus and all of a sudden they become just friends who at times are supportive and other times they just slowly fade away from my life =[ Yea i feel like my life is super lonley and yea i have family but its not the same kind of love that i am seeking......but yea i guess thats just life with lupus huh? I guess it makes me feel a little better to know that iam not alone. And well at this point i dont know what will happen in the future, i mean i am only 19 years old! So perhaps it will take me a while to meet a special someone but hopefully it will be worth the wait and he will be a verry special someone.

9 months ago

Essie

All these comments sound familiar.  I've had lupus 17 years.  My ex-husband left me within two years of diagnosis because my income dropped and our lifestyle changed.  It takes a special person to tolerate all the ups and downs and unexpected occurrences.  I am 52, and it seems that men my age and older are a bit better at understanding that chronic illness may become a normal part of life.  Some of them also appreciate women for their inner qualities, not so much of the beauty contest now.  That said, I still haven't found the guy who's right for me and will feel comfortable with all the health aspects.  I refuse to let that keep me from having fun meeting new people and being as active as I can. 

9 months ago

Jenn

My dating situations have always given me issues..I have just recently lost my ex about a week ago..he was  my best friend but all in all it was the best thing. But that just puts me right back into the dating field..something that is hard for me cause I feel I have not much to offer but me as a a person. I cannot bear a child anymore, my disese gives me restrtictions and plus when people hear the word LUPUS they run scarce...so I think I have come to the conclusion that I will never be married and my life consists of family only. I will admit it is a lonely life without someone to share all the aspects of your life to but better to be lonely than rejected or hurt... ahhh the life of a Lupus patient....isn't it grand!!

9 months ago

Dawn

I have not had a date since Oct.of last yr, and that was only the 2nd one of the year. I don't know if it's because they find out I have Lupus or it's my being overweight due to steroids. I've been divorced since 1999, and I am very lonely. I'm disabled due to the Lupus, mostly from the pain a being so tired most of the time, and I live with my Mom. No other relatives in my state to hang out with. I wish I could find a man who could love me, and understand  my Lupus, and to understand why I don't have as much energy as I used too to be able to hang out all day and even not some days. I LOVE riding Harley's. I don't have my own, but would love to meet a guy who has one. Afterall, riding on the back of one is sitting. Yes, I've been riding on one plenty of times. Had a great buddy, Chris who had one and we'd go riding all the time for the past 6 yrs, until the friendship ended last yr. He used to hang out with me alot more until I was diagnosed with Lupus, then had to quit working. I hate this disease so much!!!!!!!

12 months ago

Tyasia

I do not date because I feel like I am putting a burden on someone else.

12 months ago