Hlo welcome to my love, How are you today i hope you are okey.also my name is Miss roseline,i saw your profile at (/www.wearelupus.org) I have interest on you,i would also like to know more of whom you are and i want you to send me email on my email address (roselinembaye@yahoo.co.uk)so i can give you my picture for you to know whom l am.here is my email address believe we can move from here.i am waiting for your mail to my email address above,Remeber the distance or colour does not matter but love matters alot in life, yours friendly roseline. (roselinembaye@yahoo.co.uk)
I'm a UCIrvine student from California, Irvine. I am putting together the third annual Fashion for Lupus and other autoimmune diseases. Please visit www.careforautoimmunity.info,www.fashionforlupus.eventbrite.com, or search Fashion for Lupus on youtube.com to find out more information.
For this year's show, we are aiming to have a theme of "Journey through Lupus." We really are trying to recruit patients, their families, their friends, and their physicians from the area to be interviewed by our student videographer. If you are not in the area but would be interested in doing something like this and think that you can find someone (perhaps family members or friends) to do the videography and send us the results that would also be unbelievably helpful! We want your Journey through Lupus to show to our guests and to let them know what it really means to live your life with Lupus. We want to touch everyone's hearts and show them that there is also hope! We want to address the issues and mention that there is a lot of work being done that some of our fashion show guests can contribute to. We want to give you a chance to let them know what they can do!!! If you or anyone you know might be willing to share with us their story and help us make a video narrative of the Journey through Lupus to help raise awareness for Lupus, please message me or post on the comment wall.
We also, always accept personal stories (essays, poems, home videos, etc) to display on our website under the Autoimmune Diseases tab (which we are hoping to expand)! Your story could be posted here anonomously if you wish.
If you or your friends and family are in the Orange County, CA area and would like to help out with the annual Fashion for Lupus, please message me and let me know! Our team can always use a new perspective and an extra set of giving hands :)
Thank you all for your continuous strength. -Anteaters Against Autoimmunity
Hi my name is Nicia Ramos I am 18 years old and a senior at BlackstoneAcademy in Pawtucket,
R.I.I am doing my senior project, on the perspective of the patient and the
loved ones of patients with lupus.If
you decide you would like to contribute to my book you can write a story, poem,
or even a short paragraph about your experience.The message I want to send out to people
after they read my book is that you are not alone and there are many people who
have the same feelings as you.
If you’re interested these are the following things you must
include at the top of the story:
Name –
if you wish to be anonyms write anonymous
Patient
or loved one
Date
diagnosed
How
long its been since diagnosed
specify
when the story is from – good or bad day/When the time was
Example: Bad day/When I first got diagnosed
Take pleasure while you are
writing because if you enjoy it others will too.Put your heart into it and let your feelings
out.Remember you are not alone.
If you have writers block remember to look back at this to
know how my book is being split up:
Patients – 1st finding out, learning about it,
knowing about it
Family - 1st finding out, learning about it,
knowing about it
Friends and Lovers - 1st finding out, learning
about it, knowing about it
Just remember it doesn’t matter
what stage you are at we all go through different stages and we all have to do
each stage one step at a time.
My book is going to talk about
everything we go through from the good days, to bad days, from the struggles,
to the easy things, from the things we took advantage of before we got sick, to
the things we can no longer do or struggle to do.I want to let people know how this one
illness opens the door to other illnesses and with your help I know my book
will be successful.
I am going to try and publish
this book and when people buy them 25% will go to my school BlackstoneAcademy, 25% will go to me and my
college needs, and 50% will go to a foundation for lupus patients.I am still trying to find one so if you know
any foundations that are trying to help us then please let me know.
Thank you very much for your time
and efforts,
Nicia Julia Ramos
If you know anyone who would be interested in contributing please let them know to contact me here :) thank you very much!!
roselove1986
Gladys
Anteaters
Tammy
cynthia
Tammy
Nicia
Tammy
michelle
Ethel