WeAreLupus.org - The Social Support Network for People Living with Lupus & Fibromyalgia

Anteaters

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Hi,

I'm a UCIrvine student from California, Irvine. I am putting together the third annual Fashion for Lupus and other autoimmune diseases. Please visit www.careforautoimmunity.info, www.fashionforlupus.eventbrite.com, or search Fashion for Lupus on youtube.com to find out more information.

For this year's show, we are aiming to have a theme of "Journey through Lupus." We really are trying to recruit patients, their families, their friends, and their physicians from the area to be interviewed by our student videographer. If you are not in the area but would be interested in doing something like this and think that you can find someone (perhaps family members or friends) to do the videography and send us the results that would also be unbelievably helpful! We want your Journey through Lupus to show to our guests and to let them know what it really means to live your life with Lupus. We want to touch everyone's hearts and show them that there is also hope! We want to address the issues and mention that there is a lot of work being done that some of our fashion show guests can contribute to. We want to give you a chance to let them know what they can do!!! If you or anyone you know might be willing to share with us their story and help us make a video narrative of the Journey through Lupus to help raise awareness for Lupus, please message me or post on the comment wall.

We also, always accept personal stories (essays, poems, home videos, etc) to display on our website under the Autoimmune Diseases tab (which we are hoping to expand)! Your story could be posted here anonomously if you wish.

If you or your friends and family are in the Orange County, CA area and would like to help out with the annual Fashion for Lupus, please message me and let me know! Our team can always use a new perspective and an extra set of giving hands :)

Thank you all for your continuous strength.
-Anteaters Against Autoimmunity

last month

Tammy

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REMEMBER.. TODAY IS EARTH DAY!!! 

HAVE A GREAT ONE...

GOD BLESS:>)

3 months ago

cynthia

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thank you for everything on this site

3 months ago

Tammy

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4 months ago

Nicia

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Dear We Are Lupus user,

 

Hi my name is Nicia Ramos I am 18 years old and a senior at Blackstone Academy in Pawtucket, R.I.  I am doing my senior project, on the perspective of the patient and the loved ones of patients with lupus.  If you decide you would like to contribute to my book you can write a story, poem, or even a short paragraph about your experience.  The message I want to send out to people after they read my book is that you are not alone and there are many people who have the same feelings as you.

 

If you’re interested these are the following things you must include at the top of the story:

 

• Name – if you wish to be anonyms write anonymous
• Patient or loved one
• Date diagnosed
• How long its been since diagnosed
• specify when the story is from – good or bad day/When the time was

 Example: Bad day/When I first got diagnosed

 

Take pleasure while you are writing because if you enjoy it others will too.  Put your heart into it and let your feelings out.  Remember you are not alone.

 

If you have writers block remember to look back at this to know how my book is being split up: 

 

Patients – 1^st finding out, learning about it, knowing about it

Family - 1^st finding out, learning about it, knowing about it

Friends and Lovers - 1^st finding out, learning about it, knowing about it

 

Just remember it doesn’t matter what stage you are at we all go through different stages and we all have to do each stage one step at a time.

 

My book is going to talk about everything we go through from the good days, to bad days, from the struggles, to the easy things, from the things we took advantage of before we got sick, to the things we can no longer do or struggle to do.  I want to let people know how this one illness opens the door to other illnesses and with your help I know my book will be successful.

 

I am going to try and publish this book and when people buy them 25% will go to my school Blackstone Academy, 25% will go to me and my college needs, and 50% will go to a foundation for lupus patients.  I am still trying to find one so if you know any foundations that are trying to help us then please let me know.

 

Thank you very much for your time and efforts,

Nicia Julia Ramos

If you know anyone who would be interested in contributing please let them know to contact me here :) thank you very much!!

4 months ago

Tammy

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HOPE YOU ARE HAVING A GREAT WEEK!!

5 months ago

michelle

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Hi there! thanks for the friend request

6 months ago

Ethel

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     Hello how was your week? Any plans for this weekend? Pray you have many pain free days ahead. Take care and God Bless you.

8 months ago

Nicia

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Hi my name is  Nicia and my mother and I were wondering if you sell the products that you have the pictures of.  If so could you please let me know where and how to order them.  Thank you.

8 months ago

Ethel

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   Hello how have you been? Hope you have been feeling well these days. Have anything planned for the weekend? Take care and God Bless you.

8 months ago