Crystal
Patient
Last on 21 months ago
519 points.
Master

Crystal

cant deal right now 21 months ago

  • Ethel

    We totally understand that, hope you feel better soon.

    20 months ago

Tell us about your experience with/connection to Lupus

“I was diagnosed with Lupus during my sophomore year of college and thankfully haven't had too many serious problems. My mom has both Lupus and Fibromyalgia.”

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  • roselove1986

    Hlo welcome to my love,
    How are you today i hope you are okey.also my name is Miss roseline,i saw your profile at
    (/www.wearelupus.org) I have interest on you,i would also like to know more of whom you are and i want you to send me email on my email address (roselinembaye@yahoo.co.uk)so i can give you my picture for you to know whom l am.here is my email address believe we can move from here.i am waiting for your mail to my email address above,Remeber the distance or colour does not matter but love matters alot in life,
    yours friendly roseline.
    (roselinembaye@yahoo.co.uk)

    12 months ago

  • Gladys

    Yeah but it's the "System" in which we live in currently...hopefully things will get better in the near future. But I was able to land an internship and it's PAID and it has great benefits!!!!! I'm so excited about starting that in October. So hey I left one place & gained a better opportunity that pertains to my career goals, what more can I ask for.



    How are things with you?



    I hope you are having a pain free week



    Lots of Love,



    Gladys =)

    18 months ago

  • Anteaters

    Hi,





    I'm a UCIrvine student from California, Irvine. I am putting together
    the third annual Fashion for Lupus and other autoimmune diseases. Please
    visit www.careforautoimmunity.info, www.fashionforlupus.eventbrite.com,
    or search Fashion for Lupus on youtube.com to find out more
    information.





    For this year's show, we are aiming to have a theme of "Journey through
    Lupus." We really are trying to recruit patients, their families, their
    friends, and their physicians from the area to be interviewed by our
    student videographer. If you are not in the area but would be interested
    in doing something like this and think that you can find someone
    (perhaps family members or friends) to do the videography and send us
    the results that would also be unbelievably helpful! We want your
    Journey through Lupus to show to our guests and to let them know what it
    really means to live your life with Lupus. We want to touch everyone's
    hearts and show them that there is also hope! We want to address the
    issues and mention that there is a lot of work being done that some of
    our fashion show guests can contribute to. We want to give you a chance
    to let them know what they can do!!! If you or anyone you know might be
    willing to share with us their story and help us make a video narrative
    of the Journey through Lupus to help raise awareness for Lupus, please
    message me or post on the comment wall.





    We also, always accept personal stories (essays, poems, home videos,
    etc) to display on our website under the Autoimmune Diseases tab (which
    we are hoping to expand)! Your story could be posted here anonomously if
    you wish.





    If you or your friends and family are in the Orange County, CA area and
    would like to help out with the annual Fashion for Lupus, please message
    me and let me know! Our team can always use a new perspective and an
    extra set of giving hands :)





    Thank you all for your continuous strength.


    -Tandis Soltani and Anteaters Against Autoimmunity


    19 months ago

  • Gladys

    Hi Crystal. I just saw your status and that currently just happened to me as well.



     I hope things are going better.



    Gladys =)

    21 months ago

  • wrightrs

    Have a nice weeend !!!

    29 months ago

  • wrightrs

    Thanks for being my friend. You should put your dog on twitter. The pets on twitter dress up and go to the pawpawty. It's fun. It's a virtual party with pet from all over the word. My Cat go goes. He meets a lot of pets on twitter. Ha Ha !!!

    29 months ago

  • wrightrs

    Your dog is so cute in his glasses. How are you ? Hope your doing well.

    29 months ago

  • Alyssa

    Hi, I read your response to a question about dating and Lupus in the "Dating and Lupus" community.  I just wanted to ask you how you are doing these days with that?  Your response was 4 months ago...  If I may ask, are you and Ryan still together?  How are you doing with dating and Lupus?  I ask because I am just thinking of getting back into the "game" and have a lot of concerns about it.  I thought maybe if I saw how others deal, I would be able to deal on my own better....   Sorry for just coming in here and writing to you, me being a stranger and all....

    31 months ago

  • Samantha

    Hey ! Im pretty good. How are you ?

    39 months ago