I can tell by your post that you are also a true fighter with strong faith. I'm sure you spent many days and nights praying to god but one thing i hope you reallized throughout all that praying for a miracle. I hope you reallized one thing, YOU, yourself was the blessing. Yes we have to deal with some un-imaginable circumstances but have you every stopped and taken a look at all the people you've touched, incouraged and shown that this illness is not about accepting what it has to thrown at us but fighting back in return. Beautiful smile. Judging from your picks "Lupus" whatever, you wear it well. I constantly tell the story about when i got lupus at age 17, diagnosed at 18 (that year took away a lot 79lbs, college, stay on a death bed and several years to control and begin rebuilding myself. Like many people, i asked then question why me. For a male with Lupus the odd were 1 in a million. Why couldn't i have those odds on the lottery? What changed was a long hospital stay an apparently healthy newly married couple. The male was given what he considered a death sentence. I learned no matter how bad the situation, there's always someone doing worse and the best way to help yourself is to take a look around at whats out there, then do something to help others. I'm sure your positive influence, belief in god and willingness to fight has influenced a lot of people. You are a charming (appearance) young lady and I hope you continue to receive those blessings. Nice chatting with you. ooops oh yes about me. I'm also a fighter, exhausted every drug available for treating this illness, kidney failure, chemo, dialysis and kidney transplantation (3 months now). I stayed positive, stayed a fighter, stayed employed (airforce base loll) and stayed a positive influence for all friends and family. So of course, i don't want to hear the "I can'ts). Keep that pretty smile. nice chatting with you.
My name is Linnea Walker and I know just how you feel. It is truly a battle that I think others don't see when they look at us. Hang in there and keep giving your pain to God, because he really knows our battles, and our strength comes from him. :)
I'm a UCIrvine student from California, Irvine. I am putting together
the third annual Fashion for Lupus and other autoimmune diseases. Please
visit www.careforautoimmunity.info,www.fashionforlupus.eventbrite.com,
or search Fashion for Lupus on youtube.com to find out more
information.
For this year's show, we are aiming to have a theme of "Journey through
Lupus." We really are trying to recruit patients, their families, their
friends, and their physicians from the area to be interviewed by our
student videographer. If you are not in the area but would be interested
in doing something like this and think that you can find someone
(perhaps family members or friends) to do the videography and send us
the results that would also be unbelievably helpful! We want your
Journey through Lupus to show to our guests and to let them know what it
really means to live your life with Lupus. We want to touch everyone's
hearts and show them that there is also hope! We want to address the
issues and mention that there is a lot of work being done that some of
our fashion show guests can contribute to. We want to give you a chance
to let them know what they can do!!! If you or anyone you know might be
willing to share with us their story and help us make a video narrative
of the Journey through Lupus to help raise awareness for Lupus, please
message me or post on the comment wall.
We also, always accept personal stories (essays, poems, home videos,
etc) to display on our website under the Autoimmune Diseases tab (which
we are hoping to expand)! Your story could be posted here anonomously if
you wish.
If you or your friends and family are in the Orange County, CA area and
would like to help out with the annual Fashion for Lupus, please message
me and let me know! Our team can always use a new perspective and an
extra set of giving hands :)
Thank you all for your continuous strength.
-Tandis Soltani and Anteaters Against Autoimmunity
I was put on 60mg/day of Pred and it cleared me up almost instantly. Since then I have been tapering the pred (down to 1 mg/day now) and I was put on Plaquenil and Immuran. Not on the Immuran anymore but I am pretty steady at about 150,000+ platelets. How much pred are you on now?
Thanks so much for caring. Sorry it took so long to get back. I'm at the beach this week. The Internet is not working well here. I'm trying to rest a lot while I'm here. Genesis is one of my favorite books of the bible. I love the way the old testament and the new testament tie together. I'm so glad the lord bought you though your rough time using his word. My doctors have been changing my meds. Hope this will help. Hope you are well, Sending you prayers and hugs.
Jeff
Linnea
Gladys
Gladys
Anteaters
Jamella
Kara
wrightrs
Jada
Mai