WeAreLupus.org - The Social Support Network for People Living with Lupus & Fibromyalgia

Gladys

• Wall-to-Wall

Hey Cheryl,

How are you doing?

Hope you are feeling great!!!!!

Lots of Love,

Gladys =)

4 weeks ago.

Anteaters

• Wall-to-Wall

Hi,





I'm a UCIrvine student from California, Irvine. I am putting together
the third annual Fashion for Lupus and other autoimmune diseases. Please
visit www.careforautoimmunity.info, www.fashionforlupus.eventbrite.com,
or search Fashion for Lupus on youtube.com to find out more
information.





For this year's show, we are aiming to have a theme of "Journey through
Lupus." We really are trying to recruit patients, their families, their
friends, and their physicians from the area to be interviewed by our
student videographer. If you are not in the area but would be interested
in doing something like this and think that you can find someone
(perhaps family members or friends) to do the videography and send us
the results that would also be unbelievably helpful! We want your
Journey through Lupus to show to our guests and to let them know what it
really means to live your life with Lupus. We want to touch everyone's
hearts and show them that there is also hope! We want to address the
issues and mention that there is a lot of work being done that some of
our fashion show guests can contribute to. We want to give you a chance
to let them know what they can do!!! If you or anyone you know might be
willing to share with us their story and help us make a video narrative
of the Journey through Lupus to help raise awareness for Lupus, please
message me or post on the comment wall.





We also, always accept personal stories (essays, poems, home videos,
etc) to display on our website under the Autoimmune Diseases tab (which
we are hoping to expand)! Your story could be posted here anonomously if
you wish.





If you or your friends and family are in the Orange County, CA area and
would like to help out with the annual Fashion for Lupus, please message
me and let me know! Our team can always use a new perspective and an
extra set of giving hands :)





Thank you all for your continuous strength.


-Tandis Soltani and Anteaters Against Autoimmunity

2 months ago

Jamella

• Wall-to-Wall

hey Cheryl!! I hope your having a good weekend, hows everything going??=)

5 months ago

Kara

• Wall-to-Wall

I was put on 60mg/day of Pred and it cleared me up almost instantly. Since then I have been tapering the pred (down to 1 mg/day now) and I was put on Plaquenil and Immuran. Not on the Immuran anymore but I am pretty steady at about 150,000+ platelets. How much pred are you on now?

12 months ago

wrightrs

• Wall-to-Wall

Thanks so much for caring. Sorry it took so long to get back. I'm at the beach this week. The Internet is not working well here. I'm trying to rest a lot while I'm here. Genesis is one of my favorite books of the bible. I love the way the old testament and the new testament tie together. I'm so glad the lord bought you though your rough time using his word. My doctors have been changing my meds. Hope this will help. Hope you are well, Sending you prayers and hugs.

12 months ago

Jada

• Wall-to-Wall

How's your weekend going?

12 months ago

Mai

• Wall-to-Wall

How 'bout this. Once I get there, you can come too :)

12 months ago

wrightrs

• Wall-to-Wall

Hope your having a great weekend.

12 months ago

Brenda

• Wall-to-Wall

Hi Cheryl how are you? Hope all is well. I am feeling better. I contacted the swine flu virus and it really kick my my rear. I have been laid up for days and finally my drag myself out of bed today. I am not the type to be laying around. I don't watch much tv so that isn't even entertaining to me so I have been sleeping alot. I still feel a little tired and weak. Not much of an appetite :) Well I hope this little note finds you in good spirits and feeling great. God bless and take care.

12 months ago

wrightrs

• Wall-to-Wall

Well hate to complain all the time. But this has been a bad year for me.

12 months ago