Celina
Patient
Last on 12 months ago
12 points.
Star

Celina

feeling o.k. flowers are blooming here in Ohio.. Love it 33 months ago
Tagged

Tell us about your experience with/connection to Lupus

“I'm currently dealing with a million things going on health wise. If it's not one disease it's the other.  I've had the rashes, weight loss and gain, vasculitis, hospitalizations, hair loss, severe fatigue(professional sleeper), sores, lesions, biopsies, memory problems,  the list goes on.  But after all of this I'm surviving...”

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  • roselove1986

    Hlo welcome to my love,
    How are you today i hope you are okey.also my name is Miss roseline,i saw your profile at
    (/www.wearelupus.org) I have interest on you,i would also like to know more of whom you are and i want you to send me email on my email address (roselinembaye@yahoo.co.uk)so i can give you my picture for you to know whom l am.here is my email address believe we can move from here.i am waiting for your mail to my email address above,Remeber the distance or colour does not matter but love matters alot in life,
    yours friendly roseline.

    12 months ago

  • Lilykat

    HI! How are you doing these days? How are the boys? I'm okay. well...sort of. My kidneys are not so great right now. Will do chemo next month to help. But gosh, my legs are so swollen!! I've been trying home remedies and sleeping with my legs up at night but it doesn't help too much. My feet hurt if I'm on them too long and I can't walk. I waddle/drag my feet. I think it looks funny. :)  Especially if I'm running to the baño. Other than that I am well. It's getting hotter out here. ugh. I love the June Gloom but afternoons are too hot. My boyfriend wonders if moving to another state would be better for me. He's thinking Utah or Nebraska. :|  I've lived here all my life. I just don't see living elsewhere. anyway. I hope that you are great!!

    31 months ago

  • Christina

    I've been blessed.  The weather would be fine if it could make up its mind. lol

    35 months ago

  • Lilykat

    my parents are from Michoacan, Mexico. My boyfriend's family is from Durango,  Mexico. I love how energetic that music is! It always makes me want to dance. I'm happy for your friend. :) I've been with my boyfriend off and on for the last 7 years. I know I want to be with him and only him...but marriage scares us both I think. Our parents had...difficult marriages. but they stayed together. not always a good thing as you probably know. if we can get my Lupus under control my doctor said he'd "okay" trying to have a baby. It happened unexpectedly last year, but it didn't work out and THAT set off a major flare. He thinks we should wait 1 year. It's hard but I'm willing to wait if that means that the baby has a stronger chance and me too.

    35 months ago

  • Lilykat

    we often do not take our own advice. we really should because we are so wise. :) Thank you for your kind words. You are very blessed. I really like the picture with your boys. THAT is my biggest dream...to be a mother. I hope that you are feeling well. Take care.

    35 months ago

  • Celina

    had a rough week. saw my dermatologist and rheumatologist. behcets was positive. got lost leaving downtown cleveland ohio just kept going in circles. took one and half hour to get out. i did meet some nice dr's from boston's womans and children hospital.

       great more drugs sulfasalazine and i think he told me trental  when i see him.

    hope next week is better

    35 months ago

  • Celina

    Just wanted to say Hi and wishing everyone a HEALTHY New year...

    37 months ago