WeAreLupus.org - The Social Support Network for People Living with Lupus & Fibromyalgia

roselove1986

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Hlo welcome to my love,
How are you today i hope you are okey.also my name is Miss roseline,i saw your profile at
(/www.wearelupus.org) I have interest on you,i would also like to know more of whom you are and i want you to send me email on my email address (roselinembaye@yahoo.co.uk)so i can give you my picture for you to know whom l am.here is my email address believe we can move from here.i am waiting for your mail to my email address above,Remeber the distance or colour does not matter but love matters alot in life,
yours friendly roseline.
(roselinembaye@yahoo.co.uk)

12 months ago

Nicia

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hey just wanted to know if you wrote your story for my book!! :) Hope all is well with you and your loved ones!! 

If you would like send it to my email n******@aol.com

22 months ago

Ethel

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Hello Ashley,

Hope this fines you have a good day and school is not being to much of a pain. Hope you have a great pain free week and do take care. May God Bless you with peace, joy and many pain free days.

Friendly hug,
Gapeach

23 months ago

Nicia

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I need it within about two weeks. You have time :) thank you for helping me out and the people that will read it!!! :)

23 months ago

Nicia

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Dear We Are Lupus user,

 

Hi my name is Nicia Ramos I am 18 years old and a senior at Blackstone Academy in Pawtucket, R.I.  I am doing my senior project, on the perspective of the patient and the loved ones of patients with lupus.  If you decide you would like to contribute to my book you can write a story, poem, or even a short paragraph about your experience.  The message I want to send out to people after they read my book is that you are not alone and there are many people who have the same feelings as you.

 

If you’re interested these are the following things you must include at the top of the story:

 

• Name – if you wish to be anonyms write anonymous
• Patient or loved one
• Date diagnosed
• How long its been since diagnosed
• specify when the story is from – good or bad day/When the time was

 Example: Bad day/When I first got diagnosed

 

Take pleasure while you are writing because if you enjoy it others will too.  Put your heart into it and let your feelings out.  Remember you are not alone.

 

If you have writers block remember to look back at this to know how my book is being split up: 

 

Patients – 1^st finding out, learning about it, knowing about it

Family - 1^st finding out, learning about it, knowing about it

Friends and Lovers - 1^st finding out, learning about it, knowing about it

 

Just remember it doesn’t matter what stage you are at we all go through different stages and we all have to do each stage one step at a time.

 

My book is going to talk about everything we go through from the good days, to bad days, from the struggles, to the easy things, from the things we took advantage of before we got sick, to the things we can no longer do or struggle to do.  I want to let people know how this one illness opens the door to other illnesses and with your help I know my book will be successful.

 

I am going to try and publish this book and when people buy them 25% will go to my school Blackstone Academy, 25% will go to me and my college needs, and 50% will go to a foundation for lupus patients.  I am still trying to find one so if you know any foundations that are trying to help us then please let me know.

 

Thank you very much for your time and efforts,

Nicia Julia Ramos

23 months ago

Ethel

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You are welcome and hope you have a great weekend, God Bless

28 months ago

Nicia

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Thats okay its just hard to understand an illness that you dont have to wake up feeling.  If they dont understand do what I did.  Educate them let them know how you feel when you feel it.  My boyfriend was having a hard time dealing with it before because he was already used to the non lupus nicia and it took a while but eventually he understood and helped me out.

28 months ago

wrightrs

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Thanks for being my friend !!!

28 months ago

Ethel

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Wanted to welcome to the site, pray it helps you as much as it has so many others like us. Look forward to getting to know you netter, God Bless

28 months ago

wrightrs

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Welcome to the site.

28 months ago