Alicia
Patient
Last on 6 months ago
242 points.
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Alicia

I have Fibromyalgia...some new meds...SO READY TO FEEL BETTER 6 months ago
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Tell us about your experience with/connection to Lupus

“I have had SLE since 04 and was not diagnosed until 07”

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Results 1 - 5

  • Shellee

    Happy Birthday Alicia!! Hope you had a great day!

    5 months ago

  • Jamella

    hELLO aLICIA!!! I HOPE YOUR HAVING A GOOD DAY....



    eNJOY THE sITE=)



     



     



     



     



     



     



     



     



     



     



     



     



     



     



     



     



     



     



     



     

    5 months ago

  • Jayne

    So have you started the metho yet? are you taking it orally or the shot once a week? If you can get past the nausea at first its supposed to be a really good med. I didn't do well at all on the oral dose, but did ok for a while on the shot/injection.  No, i haven't ever seen a pain doc, my rheumy will give me pain meds when needed but to be honest I avoid them as much as possible. Which is why I have probably stayed on prednisone for so long, because that really takes away my inflammation/pain away but has caused complete chaos everywhere else! lol  I'm so sorry to hear that you are suffering so much, I hope you find a doctor and regimen that will relieve that pain, they have to find SOMETHING to help right? As far as the being tired part...good luck and if you DO find the cure for that you best be sharing it with us all :)

    6 months ago

  • Jayne

    how'd your appt. go? mine not so great..looking forward to getting to know you

    6 months ago

  • Jessica

    Hi, I saw the post you left on my question about the health insurance. Well I have truley been looking out there for some possibilities for me but I didint find anything that compares at all to medicaid. Right now I have carelink, which I could only use with the university health care system, so I use that when it comes to labs and medications, and just checkups with my primary doctor. However, when it gets a little difficult is when I have to go see my rheumatologist because my insurance does not cover visits with him, so i have to pay that out of my own pocket. I would be able to get another specialist that would be covered with carelink, but I prefer just staying with him since I have been with him for the last almost 6 years....so we know each other pretty good......there is also verry good programs out there that can help you with your medications, there was a time I had no insurance and my social worker helped me get in a few programs for my medications so maybe that could help you too. Well wish you the best and if I can help in any way just let me know!

    7 months ago